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Vitamin D deficiency?

Discussion in 'Health and wellbeing' started by frangipani123, Feb 24, 2016.

  1. frangipani123

    frangipani123 Lead commenter

    I've just been diagnosed with a severe Vitamin D deficiency after asking for a test.

    I wondered if anyone here had had experience of this and how they felt after taking the supplements - been given 100,000 iu to take over three days.

    Feeling slightly aggrieved as I have been visiting the GP for three years with fatigue, low mood, brain fog, weight gain as well severe psoriasis on my hands and feet. At different times I told them that my job was very busy over the summer months. I went in March last year and specifically asked for blood tests as I was literally dragging myself into work each day and was not coping. Received the results over the phone and was told everything was normal, but, unknown to me, I hadn't been tested for Vit D. So, I handed my notice in and left work in July. By December I still felt exhausted etc so went to the GP in January to check whether I was deficient, ask for a referral for light therapy for my psoriasis and also a referral to a counsellor because I still felt low. Discovered I hadn't been tested, had it done, waited two weeks for the results then received a letter asking me to come in as I was deficient - I had hardly any, less than 12 iu.

    Ten days on from taking the supplements my psoriasis has very nearly cleared up (for years I had so many cuts on my hands that they were covered in plasters) , I feel brighter and happier and am now tackling the jobs around my house which I have felt unable to do during the past six months, which is fantastic. However, I am unhappy that I had to ask for the test despite having many symptoms and my inability to function at work led me to hand in my notice. I have funds to live on currently but will need to work in the future.

    I will at the very least speak to the Practice Manager about this, any thoughts or experiences of similar situations?
  2. rayondesoleil1976

    rayondesoleil1976 Occasional commenter

    I had the test done before Christmas. I had to ask at my GP's surgery. I was surprised to hear it is not done as a routine test in rheumatology. Like you I was exhausted and my mood was really low! I was also aching all over - something I put down to my Lupus. I have been taking supplements for just over a month and I feel completely different. Another thing that helped was getting my thyroxine increased. I want to ask about taking vitamin D long term. I have to wear complete sunscreen all year round because of a UV light sensitivity.

    Really sorry to hear about your job. Crazy that it got that far.
  3. JTL

    JTL Occasional commenter

    A friend of my daughter suffers from a serious vit D deficiency. She was amazed by the effect of a few hours sunshine at the start of one holiday. It is possible to get vit D jab/s, though this friend had to really push to get them on the NHS. It is far more prevalent these days, possible exacerbated by people spending so much time at their desks or computers during their lunch hour in order to get work done rather than popping outside to eat. Also I think people generally work such long hours these days that they spend less time outside.
    hhhh likes this.
  4. paeony

    paeony Occasional commenter

    I have done: I had the 10,000iu twice a week over five weeks them I'm on a maintainance dose.

    I had brain fog, exhaustion, aching joints a lot, just felt wiped out constantly. I thought I was anaemic but I am very very pale and have to use high factor sunscreens in summer so just get very little naturally,

    5 months later and I'm loads better.

    Looking forward to 10-20 minutes of sun daily over the summer to get a natural boost!
  5. hhhh

    hhhh Star commenter

    I know most people do feel better after being in the sun-big thing about how so few of us get enough.
  6. inky

    inky Lead commenter

    mr inky and (now both retired) spend our winters in the Philippines. He has severe psoriasis of the type that responds to sunshine.
  7. PerMFL

    PerMFL New commenter

    I had the same issue. I was feeling really tired and down, I felt stiff and achy, and the underside of my arms and legs would often be covered in red dots that looked like clogged blood. I visited two GPs in London, one of them did some blood tests that apparently came out ok - never got to see the report- the other one suggested it was a virus. Then one day I panicked, I couldn't get out of bed. I had very painful cramps and when I tried to stand up and walk down the stairs I noticed my knees were locked, I could barely get them to bend. I thought I had some degenerative disorder and flew to Spain to get another opinion. That's when I learnt I had severe vitamine D deficiency. I was prescribed 15000 UI a month and my levels are now nearly normal. The tests also showed low ferritin levels which could add to the tiredness problem. I'm surprised to see that I was prescribed such a low dose compared to what you all have been prescribed. My doctor was concerned a high dose could cause kidney and liver damage, but that means it's taken me more that a year to "almost" reach a normal level.
  8. catbanj

    catbanj Occasional commenter

    Ditto. I was severely deficient and it led to problems with the calcium in my bones as well.

    It took 2.5 years to get back into the normal range. On the advice of a rheumatologist (I was referred to him for severe joint pain caused by this) I had
    - double max dose of vit D
    - additional calcium
    - changed my diet to be calcium rich
    - spent as much time as possible in the sun between 11-2pm each day

    The specialist advised me to move to Cornwall as even in summed the uv level in the North just aren't strong enough to be useful plus I work such long hours I just don't see daylight. I also have a special UV lamp I use every day over winter.

    Vit D defiecency is a massive silent problem in the UK:(
  9. PerMFL

    PerMFL New commenter

    After reading your post I feel like I need to find a specialist, I was only seen by GPs. Is the damage to the bones permanent? I'm concerned about that.
  10. piglet171

    piglet171 New commenter

    Vitamin D tests are not carried out routinely as they are very expensive. I have been to doctor about excessive tiredness and actually asked about Vit D as I had a malignant melanoma removed last year and have to wear sunscreen all the time. Doctor said they don't do the test unless you have a compelling reason. She said she would send off a blood sample and although she couldn't guarantee they would do the test, they probably would in this instance.
  11. lucyrose50

    lucyrose50 Occasional commenter

    I take a high dose Vit D oral spray and I find this makes a noticeable difference to me - more so than taking tablets. It might also be worth you getting checked for Vit B12 deficiency as this can cause similar symptoms. I went through a similar thing to you a few years ago - mysterious symptoms of exhaustion, aching, brain fog, skin issues. I could barely function, I managed to keep going to work but was incapable of doing anything else and certainly wasn't doing a great job. Fortunately my school were very understanding and made allowances for me while I was being passed from doctor to doctor to try and find out what was going on. I had every test going and kept being told contradictory things by different people, one of the tests showed that I was low in Vit B12 but the doctor brushed over this and said I could take a supplement "if I wanted to" but that it probably wouldn't make any difference. When I got home I looked into symptoms of B12 deficiency and discovered that they exactly matched my symptoms, and not only that, but also that another medication I take for a different condition is known to inhibit uptake and storage of B12! I was astounded that nobody had picked up on this earlier, and especially that the doctor hadn't recognised that my symptoms matched those of B12 deficiency. I started taking tablets, but didn't notice any difference, and then read on a forum that if you aren't absorbing B12 properly then taking tablets won't help. I tried a high dose oral spray, which is absorbed through the mouth rather than in the gut, and my symptoms started to improve within a week or so. I still take the spray now, and I notice a difference within a matter of days if I stop taking it, so I've concluded that my other medication must be stopping the B12 from being stored properly. It's amazing how a vitamin deficiency can cause such a dramatic effect. I hope you continue to improve and can get back to being your normal self!
    frangipani123 likes this.

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