I've just been diagnosed with an underactive thyroid. I have suspected a problem for at least 4 years but all tests came back OK. (I've since found out that the tests can come back OK even if there is a problem and I should have been checked more regularly.) I was tested in February last year and the TSH level was 3.56. This was considered in the normal range. I am TTC and recently found out that this level is considered to high for pregnancy so I went back to the doctor and asked to be referred to a specialist. She initially refused because the levels were "normal" but I persuaded her to let me be tested again and this time the level was 10.7!!! I have been for a scan which revealed the thyroid is enlarged and on the notes it is written that this is not something new. I am really scared about what will happen now. I am going to see an endocrinologist (privately so as not to wait 6 weeks) but I am worried that a lot of damage has already been done. I have done a quick search on here and found that someone had written that their mother had this problem untreated for a long time and died a month after starting treatment. Has anyone got any positive stories to share to give me some hope? I'm really scared right now.