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Problems at 20 week scan. Devastated.

Discussion in 'Pregnancy' started by whistle4it, Jul 14, 2009.

  1. Can hardly write :(
    Baby has echogenic kidneys and cysyts on brain. Anyone else had similar? Having another scan Fri. Can't function till then.
     
  2. Thinking of you, Whistle. xx
     
  3. That's ****. I'm so sorry. Will be thinking of you on Friday
    xxx
     
  4. Chica77

    Chica77 New commenter

    What will that mean for the baby?
    I am thinking of you x
     
  5. kittenmittens

    kittenmittens New commenter

    OMG Whistle, don't know what to say except my thoughts are with you. I'm not even pg yet so have no clue, but really sorry to hear your news.
    All the best, take care of yourself x
     
  6. don't know what to say, thinking of you!
    take care x [​IMG]
     
  7. Oh Whistle I'm with Kittens here, thinking of you, take care xxx
     
  8. mermy

    mermy New commenter

    So sorry to hear. Thinking of you x
     
  9. Whistle4it, i'm so sorry. Try to not to worry though, I believe that cysts are very common. My brother and SiL have a perfectly healthy, bright 5 year old who at her 18 week scan showed multiple cysts on the brain. They were told not to worry, as it was common and that the cysts would shrink/dissolve over time. The pregnancy was monitored and at birth assessed, where they decided it wasn't a problem. I am not sure on the other, have you tried googling it? Hope this helps a bit.
    Thinking of you.
    cococherry x
     
  10. So sorry to hear this. Hope it turns out alright xxxx
     
  11. Beware of google. I am so sorry Whistle. Have you been to doctor/midwife to ask to clarification. They shouldn't have told you what was wrong without more details.
     
  12. Millie dog

    Millie dog New commenter

    Whistle, my brother and SiL had very similar problems at their 20 week scan. Cysts on the brain and shadows on the lungs. Has your midwife been informed?? There's appeared on their doorstep that evening to talk things through with them. They were sent for further scans at a bigger hospital and ended up having lots of blood tests and the needle through the womb test (can't remember what it is called) because consultants ended up thinking it was genetic abnormalities. They were told that cysts were really common at 20 weeks and it was only because the other problems showed up as well that they were sent for further screening/testing. I remember the 4 weeks post 20 week scan being a huge emotional rollercoaster - be prepared for being told very bluntly what the worst case scenario could be (they were even offered a termination immidiately).
    Hang in there - all test results can make as normal and they now have a very healthy, happy and lively 15 month old daughter!
    Sometimes scans and medical people just tell us too much!
    take care
    x
     
  13. Oh Whistle, I'm sorry to hear your news. Hopefully things are not as bad as they seem now and you will get some answers soon. Take care xxx
     
  14. Wishing you all the best - hope it doesn't turn out to be as bad as you'd feared.
     
  15. So very sorry to hear this whistle, you can contact www.arc-uk.org to be put into contact with other parents who share the same devastating experiences. They offer non directive support. Good luck with the follow up consultations and take each step one at a time. I would recommend you start writing all the information you get from the specialist down as after, it's difficult to recall. Much love and care, Bobby x
     
  16. Hope things turn out ok Whistle. Thinking of you and your baby.
     
  17. Thanks all for being so lovely.
    TBH, have woken up this morning a bit cross. Came away yesterday thinking the absolute worst, having had words that I did not understand thrown at me. Have done some further research and having another scan on Fri (the waiting is hideous.) Feeling a bit better as both are apparently quite common and they have highlighted it as there are 2 signs. My down's screening was 1 in 2,221 which I believe is quite low, or at least, not high risk. I will not have amniocentesis if offered as it will not make any difference. He is still my boy, and he is kicking away as I write, bless him.
    I just hope and pray that the "signs" will resolve themselves and if not, that treatment can be relatively smooth after the birth.
    x
     
  18. I don't have any personal experience but I do have a friend who was recommended to have a termination after her 20 week scan because the baby looked to have serious problems with it's brain. They never had any doubt that they'd keep it the baby and when she was born she showed no serious issues, just a slightly larger than average head. Now she is a healthy, happy, clever 9 year old.
    I hope that your story has a happy ending too.
    Thinking of you. x
     
  19. Thanks Whizbit. I know they have to give you all options, but really, thinking about termination at this stage makes me feel rather ill. How awful.
     
  20. Roll on Friday. x
     

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