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Multiple Sclerosis - will find out today

Discussion in 'Health and wellbeing' started by Jane1962, Apr 5, 2012.

  1. Been having tests and the like for MS for a while now. Appointment with consultant later today to find out results. Dreading it, very tearful and anxious. That's it really.
     
  2. Been having tests and the like for MS for a while now. Appointment with consultant later today to find out results. Dreading it, very tearful and anxious. That's it really.
     
  3. Just wanted to wish you luck and hope that all is well. Keep posting.
     
  4. NellyFUF

    NellyFUF Lead commenter

    In my thoughts and prayers
    XXX
     
  5. best of luck xxx
     
  6. casper

    casper New commenter

    My thoughts are with you too hun.
     
  7. I really hope that everything went well for you today [​IMG]
     
  8. Thank you to you all for your good wishes, they were much appreciated. I really cannot believe it but I do not have MS. My MRI brain scan was completely clear, no scarring or tumours, very healthy in fact, about the only part of me that does feel healthy. Still there is something neurologically not right with me so more tests next week, more waiting, more anxiety. I may know more this time next week and I will keep you posted. Once again thank you for your thoughts. x x x
     
  9. Well, at least you know it's not MS. I know what it's like with the waiting, because my daughter had Hodgkin's lymphoma four years ago. Best of luck for the next stage . If there is something wrong, let's hope it's not serious and treatable. xxx
     
  10. I have been in the same situation at least three times over the last 17 years.
    I can empathise with this! I have seen countless specialists and play 'consulant bingo' every time I see a new one; 'medical mystery' 'interesting' 'can I get a student to sit in on this one' 'I may write a paper/present you at a conference' feature commonly. I am a VERY complicated case as I have a firmly diagnosed, rare neurological disorder as well. Either it's this behaving atypically, MS or an as yet undiagnosed oddity.
    I long for a diagnosis as I have had every possible test done (multiple times) and cannot get critical illness cover, life insurance etc.
    I hope you get the answers you are looking for. Out of interest, have you have DNA testing done to check for neurological genetic disorders? Good luck.

     
  11. Yes I agree the not knowing is what I find unbearable and so unbelievably emotionally draining. My GP, consultant and husband (though he has no medical training, but he's not going to let that stop him!) were all subtley preparing me for a MS diagnosis, and I felt so deflated initially when it wasn't. Later today I am having a EMG test - where someone is going to stick needles in me give me a small electric shock and record the reactions in various muscles, this may or may not further aid a diagnosis. Thanks for all your stories and support X
     
  12. I've had the EMG test on legs and lower arms, it's fine. Very odd as your muscles contract involuntarily but not painful in my experience. It can diagnose nerve damage in peripheral nerves if the current is slower than expected along the nerves. Good luck again!
     
  13. OP, I was in you position 7 years ago. I was certain I was going to be diagnosed with MS and although it was a huge relief (and shock!) that I didn't have it, I knew there was still something wrong with me.
    What are your symptoms?
    I was eventually diagnosed with Hashimoto's disease 6 years later.
     
  14. Hello
    Thank you for asking I had been wondering if I should share my news and suddenly finding it at the top of the page probably means I should.
    I am afraid it is very bad news indeed, I have motor neurone disease.
    XXX
     
  15. So sorry to hear this.
    I don't have any advice to give but didn't want to read the thread without saying anything.

     
  16. becky70

    becky70 New commenter

    I am so sorry to hear this.
     
  17. NellyFUF

    NellyFUF Lead commenter

    Much love
    xxxxxx
     
  18. I don't know you but from one human being to another send my biggest hug. x
     
  19. Thank you all, your thoughts are much appreciated.
    XXX
     
  20. There's nothing very much that is helpful that I can say other than to say I'm sorry to hear this and I hope you have all the support you need.x
     

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