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Macular degenerative disease (MD)

Discussion in 'Health and wellbeing' started by colliedogxxx, Dec 28, 2011.

  1. Hi I'm a 42 year old female currently just been diagnosed with MD - just had test to see if it wet or dry so not sure which yet?? Went to the options and next thing being referred to eye specialist - currently taking all sorts of vitamins and supplements not sure what they're going to do but let's see (ha) luetin zeanthin vit c & b zinc and flaxseed oil.

    Just wondering what anyone knows about this and is it as dire as I'm thinking - on the bright side at least will get a free dog ......

    Many thanks xx
  2. My Grandma and Aunt both had it - both the 'dry' sort. We found the Macular Degeneration Society (they're on the www) extrememly useful and informative. My Grandmother had a procedure at some point but I think her age was definitely against her (it was discovered too late) whereas my Aunt's procedure seemed to be much more successful. It took a long time for either of them to need any significant help in life.
    I thought it was quite unusual for young people (like you!) to get this. Might be worth getting in touch with sight-impaired groups in your area to see if there's a support group or something.
    Fingers crossed that the medical people can do something to help your condition slow down.
  3. anteater

    anteater New commenter

    How horrible for you, colliedog - 42 is very young to have this condition.
    When will you find out if it is dry or wet? The onset of the wet kind is more sudden, but there are treatments that can be successful. It is much more rare than the dry kind though, which progresses more slowly but is less treatable (and doesn't usually rob you of enough vision to get the free dog). I guess the supplements you are taking are in case it is the second type? I'm assuming you are not a smoker, as that is apparently the worst possible thing with MD.
    Do you already have any vision loss? Here's a link to an Amsler Chart that I sometimes check (have other vision problems, but not AMD)
    Good luck and let us know how you get on. They really can do some amazing things for eyes: when you consider how thin a layer of cells we are talking about here, some of the treatments are nothing short of miraculous! All the best.
  4. Thank you very much for the replies. I'm not a smoker but I have always been very shortsighted - I went for a usual eye test in the summer and the optician was very good he was really looking closely at the back of my eye and said I had these little golden spots on my retina in one eye - apart from my shortsightness have not had any sight loss or floaters he called them. He sent me to the eye specialist and she told me about macular degen disease (I had never heard of it) no one in my family has ever had it - and it was she who suggested I take all these supplements. Just been for the scan to see if its wet or dry so will find out in a few weeks. Thank u too for the web site lists and society I shall certainly look into it. I am trying to be positive about the whole thing yes I am quite young for this to have been spotted so hopefully this will be in my favour ;-) thanks again
  5. Red wine fan

    Red wine fan New commenter

    I agree with the comments about new treatments and their success rates. My DH had a retinal occlusion, which although not the same as MD has a similar prognosis and treatments. It came about very suddenly almost exactly 4 years ago following a seemingly unconnected serious illness & surgery. He was a similar age to you.
    He was incredibly lucky in that we have a local Eye Unit which has Consultants who are highly specialised in this field. The Consultant was straight with us; there was at that time no treatment on the NHS but if DH wanted to try something which the Consultant had used very successfully privately, he would treat him. The drug was Avastin and DH went to the local private hospital for it. The procedure took about 20 minutes - 10 to numb the eye then an injection of the drug into the eye, plus a few minutes to make sure DH was ok. He was awake throughout. The first injection helped a lot, but after 3 weeks, DH noticed his sight was worsening so the Consultant repeated the process a month later. DH has had brilliant stable vision ever since. It wasn't cheap [£850 per procedure] but we looked on it as a small price to pay compared to the alternative. The Consultant was pleasantly surprised by how few injections DH needed, as older patients generally needed 6 injections, but at that time there was little clinical study of the effect of the drug on such a comparitively young person. This may well have changed in the intervening time, so please don't despair. If you want to PM me, feel free to do so. I wish you the very best of luck x

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