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Labyrinthitis - we dizzy people!

Discussion in 'Health and wellbeing' started by Kitschwitch, Aug 6, 2006.

  1. aaaah - poor you. you have my sympathy. (I've been off work now for 7 weeks with a combination of fibromyalgia and inner ear problems)

    It might help if you cut out stimulants - coffee, tea, alcohol and cigarettes can aggravate the inner ear. Some people recommend cutting out salty foods as they can cause the vessels to constrict too.

    If you think you need a sick note then go and ask - I am sure your GP will be sympathetic. You can also ask for a referral to ENT - remember to ask your GP to mark it as urgent as otherwise it is generally a 3 month wait on the NHS.

    I understand what you say about the exhaustion - the brain has to work so hard to compensate and it is a dreadful feeling. Take the time off if you need it - you sound worn out and it will help enormously if you are able to go at your own pace again without having to rush around.

    let us know how you get on.

    best
    Rosie

    If I am workiing at the computer I find it helpful to keep my eyes on the keyboard rather than the screen while I am typing. That helps too :)
     
  2. Hey Mrs ICT!

    It sounds like you have got it bad - I think that everyone on the board who has gone through this hits rock bottom at some point. One of the hardest things to deal with is that it is so dreadful yet not visible like a broken arm and it can be a really lonely place. This is a bit of a ramble, but...

    I found (and still do) noisy places really hard and so avoid assemblies (understanding SMT) and crowds (ASDA still does me in - must be the acoustics and lighting). The medication takes time to build up and there are alternatives - serc/cerc is a popular one.

    A short term fix for me was acupuncture as it really got the blood flowing around the ears or something, but it is not a long term solution (and expensive)

    Get yourself to a GP and get referred - it is the only way forward and then you will be in the system. depending on how flush with cash, you might want to ask about a private referral (about 150 -200) with the consultant and that dramatically speeds things up - lots of them do this. that, lots of rest and healthy living/eating.

    Best of luck!
     
  3. Thank you for your kind words and advice. I'll see how I'm feeling tomorrow, but if I'm not up to it I'm not going to push myself and I'm going to go back to the docs.

    Don't really drink tea/coffee and don't smoke, but I do have a weakness for sweet food, esp chocolate so I suppose I should cut that out!

    I know exactly what you mean about supermarkets. I got to the till on Sunday and had a complete panic, thought I was going to pass out, ended up on the phone to my mum (she seems to understand!) to calm myself down. Panic seems to make the situation much worse.

    Early night now! Thanks again, I'll keep you updated!
     
  4. Hope you are at home today
     
  5. how are we all doing?

    I'm still waiting for the "urgent" appointment to see ENT:(
     
  6. Still suffering. Had to come home yesterday afternoon and I'm off again today.

    I have another docs appointment on Wednesday, doubt they'll do anything though.

    I just feel dizzy, nauseus and exhausted all the time, I need some relief from this.

    How is everyone else coping? Still on the stemetil for the nausea, anyone on anything to help the dizziness?
     
  7. can't take anything till I see the consultant

    sounds as if vestibular rehabilitation might help mrs ICT. sorry you're still struggling too.
     
  8. Hi everyone. I am so glad to have found this thread - I went to the doctor this morning and found out I have labyrinthitis - I'd never heard of it!

    I have read through most of the posts, but one thing I'm not sure about is how long I will be dizzy for and whether it will reoccur? The doctor said I should be ok in a couple of days but the NHS website said 2 - 3 weeks - or does it vary from person to person?

    I was prescribed some tablets for the vertigo and am a lot better than when I woke this morning. Although walking around or sitting for a long time is very difficult.

    Thanks for any replies. xxx
     
  9. eeek! poor you but glad the tablets are helping

    my own ear troubles are caused by menieres not labrynthitis - I gather labrynthitis varies in its duration. those who take it seriously and rest seem to recover faster. hope someone gives you the answer you need.

    take care
     
  10. My 15 year old daughter suffers from this. Most unpleasant and I'm afraid even I have accused her in the past of being weedy when she complains. Sadly seems there is little you can do other than wait for it to pass. My sympathies!
     
  11. rotten to have it at such a young age - hope it hasn't affected her confidence and that she remains lab free from now on

    I am celebrating - just got a letter from the hospital. I have an appointment with ENT.

    14 weeks after my GP referred me (and two months and counting off school)

    Celebrate good times
    come on ! - Let's celebrate
    -
    Celebrate good times
    come on ! - Let's celebrate
    -
    There's a party going on right here
    a celebration to last troughout the years.
    So bring your good times and your laughter
    too
    we're gonna celebrate your party with you !
    Come on now
    - celebration
    -
    let's all celebrate and have a good time
    - celebration
    - we go celebrate and have a good time.
    It's time to come together
    it's up to you
    watch your pleasure
    everyone around the world
    come on
    it's a celebration.
    Celebrate good times
    come on
    it's a celebration
    celebrate good times
    come on
    let's celebrate !
    We're gonna have a good time tonight
    let's celebrate
    it's alright
    we're gonna have a good time tonight
    let's celebrate
    it's alright
    baby
    we're gonna have a good time tonight
    let's celebrate
    it's alright
    we're gonna have a good time tonight
    let's celebrate
    it's alright.
    Celebrate good times
    come on
    let's celebrate
    celebrate good times
    come on
    it's a celebration.
    Celebrate good times
    come on
    let's celebrate
    celebrate good times
    come on
    it's a celebration.
    Come on and celebrate - tonight
    'cause everything's gonna be
    alright.
    Let's celebrate
    celebrate good times
    come on
    let's celebrate
    celebrate good times
    come on !


    All hail the NHS.

     
  12. Thank you for your replies. I am feeling a bit better today.

    rosencrantzand - I really feel for you, meniere disease seems awful from what I have read. At least you have got an appointment at the ENT at last! You must be pleased.
     
  13. Rosie, am delighted for you. Onward and upward!
    And I would just like to say how incredible you all are on this thread - when I started it, I had no idea of the sort of response it would get, nor how many people are affected by dizzyness in some way.
     

  14. Sudafed.

    NOT the one for colds and flu, but the pharmacist version (little red pills or fluid version). It gets rid of mucus-type build up in the head so taking pressure off the inner ear. It's best just when you first start feeling a bit woozy. Touch wood i've not had a day off all last year and the last time I was laid up in bed was before I found Sudafed (3 years ago). I try not to take it later in the day because it does have the effect of insomnia (though I havent taken any this week and i'm here at 2.45am!) On the plus side, when you take one, you zing your way euphorically through the next 6 or so hours!
     
  15. thanks for the tip, nicelady, tho I'd be careful about using sudafed too often:)

    I saw a consultant yesterday - I have severe hearing loss on one side and my balance turns out to be worse than I realised. Anyway, he's ordered a brain scan to rule out anything other than meniere's, put me on Serc and reassured me that, once my inner ear is stabilised, a hearing aid will make a world of difference.

    I'm trying to feel grateful and not get irritated by the fact that I've waited for this since the referral in August. Now I'm just hoping this is resolved before my sick pay starts to go down. Will let you know what happens.

    Rosie
     
  16. Oh heck it's back....

    1 mth after the original bout it is back again, the dizziness creeping up on me and I am starting to fall over again. Most often leaning to one side as I stand or sit now as well...

    I hope it is just because I am tired... I am afraid it isn't :eek:(
     
  17. (((((maddy)))))

    have you seen your GP yet? if not, perhaps it is time to ask her/him for a referral to ENT

    I know that sinking feeling when the balance goes. You may be tired because the brain is working harder to compensate for the problems with balance. It appears that this is may be why I went on to develop fibromyalgia (on same spectrum as chronic fatigue syndrome) - I struggled for far too long on my own and then had to wait months to see a specialist. if the symptoms have returned you need a clear, expert diagnosis and only ENT can give you that.

    are you avoiding foods and drinks that may make it worse - caffeine, chocolate etc

    I got so fed up because I had a visit from a friend who kept saying how well I looked. I can't even walk to school to collect my little boy but I am sure she thinks I am not really ill because I look okay and can function fairly well in my own home.

    take care


    from your fellow dizzy
     
  18. I've only just discovered this thread... I've suffered from vertigo, dizziness, nausea, feeling spaced out, tinnitus, hyperacusis and ear ache for over a year now. It started after a bout of Labyrinthitis and the symptoms seem to come and go. I've been back and forth to the doctors ever since. I've had a couple of appointments with an ENT consultant, appointments with a tinnitus therapist and yet I'm still awaiting an MRI appointment and results of a blood test to find out what's actually going on!

    My headteacher is quite tolerant and has allowed me to have time off for appointments and when I've had really severe bouts of dizziness, etc. However, I just feel so guilty with all the time I seem to be taking off. Ironically, at the moment I'm off sick with a common cold! This just adds to my guilt beacuse I already feel I've 'used up' my sick days with my 'ear problems'. No one else in my small school (only 3 other teachers) has had anywhere near as much time off as me and I worry that their patience will only stretch so far! People are so kind, asking how I am but I feel I should start lying to them and say I'm fine, instead of saying "well, I felt naseous all weekend, the noise of people talking in the staffroom is almost unberable to my ears and I have constant ear ache"!

    nerak
     
  19. so glad you're getting lots of support at work with this - don't feel guilty, dealing with the physical stuff is hard enough as it is.

    how long have you been waiting for your MRI scan?

    sorry, short post - struggling a bit today:)
     
  20. I've only been waiting a month so far. I've been given the impression not to expect it any time soon, so probably won't until at least January, maybe later. I would have been put on the waiting list sooner except the doctor at my first ENT appointment didn't do anything other than hearing tests, despite me already telling them that hearing loss wasn't an issue.

    Nevermind, at least it gives me something to look forward to once the excitement of Christmas & New Year dies down! : )

    nerak
     

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