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GIST

Discussion in 'Health and wellbeing' started by Lilyofthefield, May 13, 2010.

  1. joli2

    joli2 New commenter

    I know, but we always think we are stronger than that , we'll be fine....
    Good luck, these first days/weeks ARE the worst, but will get better. Someone told me at the time that 'you'll be able to deal with it betterwhen it gets out of your stomach and into your head' . I knew what they meant only after that hapened: when I stopped waking up with that awful stomach-lurching remembering.
    Work is good for keeping your mind off it.
     
  2. I've been trying to do a search to find out what your experience was but as usual "no results found"!
     
  3. joli2

    joli2 New commenter

    I was diagnosed with an incurable form of non-hodgkins lymphoma (one of the blood cancers) about 10 years ago.
     
  4. You errrr.... sound well!
     
  5. joli2

    joli2 New commenter

    Ach you know, i just becomes part of life. With ups and downs of treatment/remission/relapse/treatment. I am facing a big hill soon, but you do get used to it all.
     
  6. This may yet turn out to be nothing like as serious but it is a comfort to hear from people like you who have coped with it.
     
  7. bedingfield

    bedingfield New commenter

    Just caught up with the threads and I am so sorry to hear your news.
    Not sure what else to say, but you always offer such good advice to people, that I wanted you to know that I will be thinking of you.


     
  8. Thank you. Everyone on here has been so kind. My husband has at last asked me a question about it tonight.
     
  9. anteater

    anteater New commenter

    The lack of questions so far is bound to be his way of "coping", not an indication that he doesn't care. Best to keep posting on here if you want a response!
     
  10. Come to think of it, I can't remember myO/H asking any questions either. Only on right-now practical things like are you feeling a bit better today, would you like a pillow sort of stuff.
    He was abroad most of the time up to the op and although that was lonely and a bit scary, in some ways it was easier as I would have probably wittered my head off and he wouldn't know what to say. So, as others said, this place came in very handy! Typical of a lot of people, particularly many husbands, I think (is that sexist? I'm not sure...). And those who haven't had much experience of serious illness -mine felt pretty squeamish, too I think....
    I did get looked after really well, though, spoilt rotten, actually. He did care, really. I'm sure Mr L will be just the same ...make the most of it...
     
  11. joli2

    joli2 New commenter

    I have had to 'teach' my husband not to try and fix things/insist everthing will 'be ok' etc. if I'm upset, but just to let me be upset because it is a big and scary thing.
     
  12. Oh heck now I know its bad!

    Put the jkeyboard down and step away from google... time for a cuppa.. what you chose to put in it si up to you? brndy, beer.
    I hope you have a purple leotard for our cartwheel display at christmas.
    Take care thinking of you.

     
  13. My family just pretend it's not happening.
    I like my job, Woozle! I'm not teaching!
     
  14. They'll still be absorbing the news. It will take time. Once you get given your treatment plan, they'll wise up a bit. I was wondering about your son's wedding - when is that?

     
  15. Not till Sept 2011. I haven't told them yet since they're going on holiday on saturday. there might be not much to tell - the biopsy might be reassuring. I am ahead of myself in doom and gloom and need a slap.
     

  16. SLAP (well, you did ask for one).
    You can't win, can you?
    They'll be mad you didn't tell them - yet, as you say, they might be
    mega-worrying over all next week about something that turns out to be
    quite sortable.
    hope you sleep ok tonight ,Lily.
     
  17. Since the HRT kicked in I have slept like the errrr.... dead.
    Ta for the slap.
    [​IMG]
     
  18. oh Lily - have just caught up with this thread too
    ==##== from me too

     
  19. Fu*cketyfu*cketyfuck have had phone call today to say it is cancerous and am booked in with GI surgeon next week at f*cking cancer wing.
    Where I might say they have a worldclass specialist in this particular fu*ckularism.
     
  20. Oh Lily,
    I don't know what to say.
    I hope you receive the best treatment. Poor Elaine was so mucked around!
    Take care and fight for the best treatment.
    Lots of love
    Kirsi (formerly known as LoveyB)
     

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