Good morning all I thought I might try reaching out to this community for any advice or support you may have. Our baby boy was born just over a week ago, and has had quite a turbulent start. we made it home for one night before being readmitted to hospital over concerns of no bowel movements. The next few days involved scans, running traces, a perforated bowel, emergency surgery on his bowel, a stoma bag attaching, a stay in PICU and a suggestion that the cause behind it all may be Cystic Fibrosis. I can’t really believe what both myself and my husband have survived the last week. I look back at pictures of us from the day he was born and want to break down crying...it hurts to think how blissfully unaware I was of what our futures potentially have in store. So we are still waiting confirmation of CF..our results are being fast tracked. The bowel op went well and though he is very drugged up and now looks teeny tiny, I'm hoping time will heal him. So we are now stuck with this potential diagnosis, and a million questions hanging over us. We also have a two year old who can’t understand why I’m not at home and I miss her so much. I’m spending alot of my time now considering our options for when I return to work and how we can manage financially as well as provide the best care for him. My work place has a one day emergency care policy for ill children, and then someone else is meant to step in for you. This clearly won’t be compatible with a child who may have spells of illness or hospital stays. I’m at the top of UPS and a middle manager, so loss of this income will have a considerable impact on us, though I’m already planning on contacting my union rep to see what we can do once the dust has settled a bit more..it’s not something I could tackle by myself. So what I’m really asking is for any support from parents in a similar position...I don’t know anyone with/carers of anyone with CF and would really welcome and contact with anyone who is. Or anyone who has faced a similar need to change jobs/ role and how you handled that. Many thanks for your time, B.